tag:blogger.com,1999:blog-2687606859829896255.post1483211459615893095..comments2013-05-17T15:14:11.949-07:00Comments on TBH THURSDAYS: The hardest thing I have doneUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2687606859829896255.post-14625443180049310282011-10-20T18:10:13.459-07:002011-10-20T18:10:13.459-07:00Thank you Bobbi
you would certainly see the diffe...Thank you Bobbi<br /><br />you would certainly see the difference with having your children. I am sure your daughter gets more support and understanding.Karen Shttp://www.tbhthursday.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-2687606859829896255.post-11258655960781006692011-10-14T20:22:10.496-07:002011-10-14T20:22:10.496-07:00your view is accurate, karen. i have 2 children wi...your view is accurate, karen. i have 2 children with disabilities - one disability is visible (a wheelchair user), the other is invisible (ADHD & tourettes). the world is much more understanding, gentle and supportive of the visible disability. the invisible one illicits judgement, criticism, and a general 'smarten up and try harder' attitude. <br /><br />i knew a woman who ran a program for preschoolers with multiple disabilities. after several years as their teacher she gave birth to her own child with multiple disabilities. when he was about 3 yrs old i asked her, 'when you were a teacher of kids like marty, did you really understand what it was like for their families?' she replied, 'i'm still ashamed of how i judged them, and how unreasonable my expectations were. what i know now is that if you can put your coat on and go home at the end of the day, you can NOT understand.'<br /><br />karen, sharla, may God bless you and all those parents who commit to children who cannot reciprocate in kind. "one day, this day", is all He asks of you, and i know His provision will be sufficient for that task.Bobbi Juniorhttps://www.blogger.com/profile/16366421883424533929noreply@blogger.comtag:blogger.com,1999:blog-2687606859829896255.post-28857512326768913562011-10-13T19:44:44.128-07:002011-10-13T19:44:44.128-07:00Raising a child with FASD is more complicated, dif...Raising a child with FASD is more complicated, difficult, and sad than anything that you can explain to someone who hasn't done it. Even people who understand the theory of it well (like social workers), cannot understand what it is like to live it, to not be able to light candles at birthdays because you can't keep matches or lighters anywhere in the house, to have a child that climbs onto the roof repeatedly with no concept of the potential danger, to have others think that you are being overprotective because you have to be careful about your almost ten year old running out into traffic.<br /><br />Anyway, I appreciate your honesty. I am nervous about going into the teen years and adding hormones into the mix. I can only imagine. <br /><br />I could also relate so well to the pain that goes with your child not being invited to parties and such and with wishing that it was a disability that carried a neon sign with it so that others wouldn't judge her and me.<br /><br />I hope that tomorrow is a day that the blessings outweigh the heartache and frustration in your house. Can hardly wait until we drive to Calgary so that we can get in a really good visit. It will be great to talk to someone who truly "gets" it.Sharlahttps://www.blogger.com/profile/13584862276628016314noreply@blogger.com